Patients stories

Patients, relatives, family stories

Blog, Michael Phillips

How to stand up to a Government Health Department – and win

Political promises, bureaucratic bungling and families fighting back The Phillips family are fighters. And winners. Indy was born with Rett’s syndrome, a cruel genetic disease that can cause physical deformities, seizures and life threatening cardiac arrest. When she was first diagnosed with the disease, Doctors said that Indy would not survive her childhood. Instead of accepting …

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